OKay so I have managed to worry some people with Treyton's non-urinating days these past week, and weird tired behavior and loose BMs that have been a little off color. However...

Talked with Joan (Treyton's Liver Team nurse) today and she said his labs continue to be AWESOME. So nothing elevated, or out of wack. I was concerned for kidney function since he hadn't been outputting as much peepee as we think he should...but his labs show nothing going on liverwise or kidney wise...or anything-wise! They think the whole pee thing is a part of normal development...you know having the ability to hold it in, not having to go as much because the kidneys are maturing...and you know what? Since his labs don't show any need for concern...I am letting my worry go! Just going to breath and stop worrying.

Having said that...LOL! I can't stop worrying completely yet because THEY HAVE STOPPED THE PREDISONE!!!! (happy silly crazy dance here...whoop whoop woo hoo!)
But it still makes me nervous (now serious faced...) So he goes for labs again in two weeks and if he continues to progress this smoothly, he will be on NO steroid! Just Neoral .4 ml X 2 p/day and Vite D .5ml once a day.

It is nuts! I feel like he is taking nothing! So a happy mommy here and I am sure the rest of the fam is reading this and are ecstatic too!

Thanks for checking in...oh and I want you to do me a favor...for those of you wo continue to be a regular reader...email me at the following address. I have added myself to the EMAIL tab at the top of the screen several times, and it always sends me the initial email saying I will receive notifcations of updates...and then I never do. I am going to ask the web guy at COTA...but I need to know how many of you there are by your emails...so please please help me out.

shannon.flies@yahoo.com (Thanks!)