It's here! The date we have been waiting for since we were told that the first year was the most critical part of his recovery. He has made it, and passed with flying colors! Treyton has had a picture perfect post-transplant journey...the only complications he has experienced have been a few viral colds and fevers. While those were a bit scary at times because of his compromised immune system, they were nothing compared to the types of issues we know can happen to these special liver kids after this surgery.
We were in Chicago on Thursday for his Anniversary Check-up...it went great! HIs labs continue to be perfect, they are happy with his growth and gain, they say his liver continues to remain very soft and he finally has no palpable spleen! Really the only concern they have that I brought up is the fact that he only has four teeth still. Two top and two bottom, and while the team says that they expect slow dentification in these children due to the hits their bodies take from the pre-transplant disposition, he should have more teeth by now. So they are recommending that we go see the dentist, get their advice, and then proceed. We are thinking some sort of gum cutting surgery is going to be in Treyton's near future...and we are going to try to get it done in Chicago, and that way if we have any concerns, we are right there. To end his check-up, they have gotten rid of his Bactrim and reduced the amount Predisone he takes. He was at .7 ml and now is at .3, we get labs in two weeks, and if he does well, they will stop it completely, and then have labs again in another two weeks. Since he has had no rejection episodes, this is why they are trying to do away with the steroid. It may be unnecessary. So aside from his Vitamin D supplement, and cyclosporine...this is it for meds! It's hard to believe that he came home on nine meds and a vitamin, and now we are down to almost nothing!
I guess I just want to give thanks to God most importantly...He gives and takes away, and I feel so blessed that he wanted Treyton to be here on earth, changing lives and touching hearts. His story has actually been chosen by Children's Memorial to be THE story for their annual fundraiser with COSTCO brand stores, to help raise money for the hospital. That's just amazing! Secondly, I want to thank the next most important person, who without his sacrifice...we don't know what Treyton's fate would have been. Tom Miller shares in Treyton's anniversary as well, one year ago, he risked his life to save our son. It still brings me to tears every time I reflect upon that day, and his willingness to do whatever it took for Treyton. He is a wonderful father, and a true Hero. These two serves as a ture testimony to WHY organ donation is so important! The impact of donation on the recipient and the people who love them is immeasurable. Please be an organ donor.
I want to give thanks to all of our family for their unwavering support, concern, love, time and tears this past year. Without our families, where would we be? I want to thank all of my friends, and church family and the community of Bloomington-Normal for supporting us, and especially praying for us. Prayer is the Greatest gift, and I do believe with my whole being, that one of the reasons for Treyton's smooth sail thus far is because of everyone' faith in the Lord, that He would bless Treyton's family with the strength to help him fight, and also in giving Treyton the strong will to fight for his life too. Treyton the Trooper! Thank you for continuing to read this blog, and check in on our miracle!
Promise to post new pics very soon!
Love to all!
Shannon (Treyton's Mama)